Journal of Pain and Symptom Management

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Updated: 6 min 56 sec ago

Our differences make us stronger

22 hours 46 min ago
To improve the quality of hospice and palliative care, the American Academy of Hospice and Palliative Medicine (AAHPM) models inclusion and embraces diverse backgrounds and perspectives of those with whom we work and the patients and families we serve. In 2015, AAHPM initiated a multi-year strategic plan1 to guide efforts to increase the Academy’s commitment to diversity and inclusion both within the organization and in the broader field of hospice and palliative medicine. We define diversity as referring to the composition of a group of people from any number of demographic backgrounds, identities (innate and selected), and the collective strength of their experiences, beliefs, values, skills and perspectives.
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Prevalence of dyspnea among hospitalized patients at the time of admission

February 22, 2018 - 12:00am
Dyspnea is an uncomfortable and distressing sensation experienced by hospitalized patients.
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Implementation of Medical Assistance in Dying (MAiD): A Scoping Review of Health Care Providers’ Perspectives

February 22, 2018 - 12:00am
With the growing interest in Medical Assistance in Dying (MAiD), understanding health care professionals’ roles and experiences in handling requests is necessary to evaluate the quality, consistency and efficacy of current practices. This scoping study sought to map the existing literature on health care providers’ perspectives of their involvement in MAiD.
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Differential family experience of palliative sedation therapy in specialised palliative or critical care units

February 21, 2018 - 12:00am
No study has examined the varying family experience of palliative sedation therapy (PST) for terminally ill patients in different settings.
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Completing the Bucket List: Leveraging Telemedicine in Oncologic Palliative Care to Support Legacy-making and Dignity

February 21, 2018 - 12:00am
Guidelines from standard-setting organizations in oncology support early adoption of palliative care along with usual oncologic care1 and Telemedicine has been utilized to improve access. A recent review examined the use of Telemedicine to provide palliative care when patient travel is excessively burdensome or not possible.2 Results showed patient and caregiver satisfaction and improved comfort from symptoms. The potential for novel uses of Telemedicine beyond symptom control in oncologic supportive/palliative care was recently demonstrated via a Telemedicine approach to supportive group psychotherapy for young adults with cancer.
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Information Framing Reduces Initial Negative Attitudes in Cancer Patients’ Decisions about Hospice Care

February 20, 2018 - 12:00am
Negative attitudes toward hospice care might prevent patients with cancer from discussing and choosing hospice as they approach end of life. When making a decision, people often naturally focus on either expected benefits or avoidance of harm. Behavioral research demonstrated that framing information in an incongruent manner with patients’ underlying motivational focus reduces their negative attitudes toward a disliked option.
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Adapting an Early Palliative Care Intervention to Family Caregivers of Persons with Advanced Cancer in the Rural Deep South: A Qualitative Formative Evaluation

February 20, 2018 - 12:00am
There is a scarcity of early palliative care interventions to support family caregivers of persons with advanced cancer living in the rural Southern U.S..
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Beyond Pain: Nurses’ Assessment of Patient Suffering, Dignity, and Dying in the Intensive Care Unit

February 17, 2018 - 12:00am
Deaths in the Intensive Care Unit (ICU) are increasingly common in the United States, yet little is known about patients’ experiences at the end-of-life in the ICU.
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Cannabis for vismodegib-related muscle cramps in a patient with advanced basal cell carcinoma

February 15, 2018 - 12:00am
Vismodegib is a hedgehog inhibitor drug indicated for metastatic or locally advanced basal cell carcinoma (BCC) that is not fit for surgery or radiation therapy. One of the most common side effects of vismodegib is muscle cramps which can cause a decrease in quality of life (QoL) and treatment discontinuation. Cannabis is known to improve spasticity (including muscle cramps) in multiple sclerosis patients [1].
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Incidence of acute suppurative sialadenitis in end-stage cancer patients: a retrospective observational study

February 15, 2018 - 12:00am
Acute suppurative sialadenitis (hereafter referred to as sialadenitis) is accompanied by pain and fever and can diminish the quality of life (QOL) in end-stage cancer patients; however, its incidence is not clear.
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PC-FACS February 1, 2018

February 12, 2018 - 12:00am
Neuropathic Pain
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“I’m not a spiritual person.” How hope might facilitate conversations about spirituality among teens and young adults with cancer

February 8, 2018 - 12:00am
Supporting patients’ spiritual needs is central to palliative care. Adolescents and Young Adults (AYAs) may be developing their spiritual identities; it is unclear how to navigate conversations concerning their spiritual needs.
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Training in Global Palliative Care within Palliative Medicine Specialist Training Programs: A Moral Imperative

February 8, 2018 - 12:00am
Given that the fundamental goal of palliative care is “the prevention and relief of suffering,” it is imperative that palliative care clinical and educational programs in high income countries (HICs) partner with colleagues in LMICs to assist them to expand and facilitate access to palliative care training of all levels and for all types of palliative care providers.
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Predictors of Late Palliative Care Referral in Children with Cancer

February 7, 2018 - 12:00am
Early integration of palliative care (PC) in the management of children with high-risk cancer is widely endorsed by patients, families, clinicians, and national organizations. However, optimal timing for PC consultation is not standardized, and variables that influence timing of PC integration for children with cancer remain unknown.
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Family meetings in in-patient specialist palliative care: A mechanism to convey empathy

February 6, 2018 - 12:00am
Family meetings are increasingly used in palliative care, yet have little empirical evidence of their impact in in-patient settings.
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Pediatric Oncology Provider Perceptions of a Pediatric Palliative Care Service: The Influence of Emotional Esteem and Emotional Labor

February 6, 2018 - 12:00am
Pediatric palliative care consults for children with cancer often occur late in the course of disease and close to death, when earlier involvement would reduce suffering. The perceptions that pediatric oncology providers hold about the pediatric palliative care service (PPCS) may shape referral patterns.
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A pragmatic evaluation of symptom distress after group meditation for cancer patients and caregivers: a preliminary report.

February 5, 2018 - 12:00am
Complementary health approaches such as meditation may help improve cancer patient and caregiver symptoms, yet little research has examined the clinical application of these programs.
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Defining the Scope of Prognosis: Primary Care Clinicians' Perspectives on Predicting the Future Health of Older Adults

February 5, 2018 - 12:00am
Studies examining the attitudes of clinicians towards prognostication for older adults have focused on life expectancy prediction. Little is known about whether clinicians approach prognostication in other ways.
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Rasch Analysis of the Edmonton Symptom Assessment System (ESAS)

February 5, 2018 - 12:00am
The Edmonton Symptom Assessment System (ESAS) is a widely used multi-symptom assessment tool in cancer and palliative care settings but its psychometric properties have not been widely tested using modern psychometric methods such as Rasch analysis.
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The Long-Term Impact of Neurofeedback on Symptom Burden and Interference in Patients with Chronic Chemotherapy-Induced Neuropathy: Analysis of a Randomized Controlled Trial

February 5, 2018 - 12:00am
Chemotherapy-induced peripheral neuropathy (CIPN) is a common side effect of cancer treatment, and may adversely affect quality of life for years.
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