Resource Center: organization, organization

The website for the Association of Professors of Human and Medical Genetics.

Contains information on AMA policies, and a PolicyFinder tool where you can search and read AMA policies.

The Huntington's Disease Society of America (HDSA) has a national office that produces and distributes, free of charge, publications and informational materials on Huntingon Disease (HD) and maintains a toll-free information hotline to assist physicians, patients and family members. Through 12 HDSA regions, 38 volunteer-based chapters and affiliates, 200+ support groups, they reach out across the nation to offer HD patients and their families guidance, encouragement, resource information and leadership opportunities at HDSA events, meetings and seminars (From their Website).

The American College of Medical Genetics (ACMG) provides education, resources and a voice for the medical genetics profession. To make genetic services available to and improve the health of the public, the ACMG promotes the development and implementation of methods to diagnose, treat and prevent genetic diseases (From their Website). The website Includes information on resources, practice guidelines, and policy statements.

Genetic Alliance is a coalition of genetic advocacy organizations, health professionals, and health companies. The site contains a comprehensive, searchable directory of support and advocacy organizations. It also acts as a network of "stakeholders in the genetics community" to define policy, promote research, and protect the interests of its members.