Resource Center: organization, support systems
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Description:
This is the list of diseases currently covered in the Rare Disease Database (From their Website). With every disease, there is a link that provides a general discussion on the disorder, as well as a list of organizations and resources.
Source:
National Organization for Rare Disorders (NORD) 0
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Description:
The National Organization for Rare Disorders (NORD) is a unique federation of individuals and organizations working together to build a better world for people affected by rare diseases (From their Website). This organization maintains a database of consumer friendly reports for over 1,100 rare diseases (many of which have at least a genetic component). The site also has a searchable index of support and advocacy organizations.
Source:
National Organization for Rare Disorders (NORD) 0
Your rating: None
Description:
Genetic Alliance is a coalition of genetic advocacy organizations, health professionals, and health companies. The site contains a comprehensive, searchable directory of support and advocacy organizations. It also acts as a network of "stakeholders in the genetics community" to define policy, promote research, and protect the interests of its members.
Source:
Genetic Alliance 0
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- genetics (3)
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- organization (1)
