Resource Center: genetic medical research , children
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Description:
This educational website provides information about partial trisomy for 10q and provides a list of information centers and support groups.
Source:
National Organization of Rare Disorders (NORD) 0
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Description:
The mission of this informational website is to bring families of children with Trisomy 10q together. The primary objectives are: provide a registry of children and families with 10q so families can contact each other, provide a place where families can submit information on their children and experiences, provide links to related web sites, and build a database for researchers on this syndrome (From their Website). Several parents have included stories and photos of their children.
Source:
Distal Trisomy 10q Families 0
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Description:
The mission of this website is to encourage and facilitate communication among families having a child with 5p-syndrome and to spread awareness and education of the syndrome to these families and their service providers (From their Website).
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Five P Minus Society 0
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