Resource Center: genetic testing, consent

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Promoting Safe and Effective Genetic Testing in the US
Description: 
This is the final genetic testing report of the Task Force on Genetic Testing; the Task Force highlights principles and provides recommendations regarding genetic testing. The report includes chapters on: Ensuring the Safety and Effectiveness of New Genetic Tests, Ensuring the Quality of Laboratories Performing Genetic Tests, Improving Providers' Understanding of Genetic Testing, and Genetic Testing for Rare Inherited Disorders.
Source: 
Genome.gov, National Human Genome Research Institute
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Informed Consent during Genetic Testing

Description: 
Obtaining informed consent from patients is a vital part of the genetic testing protocol. Written documentation of informed consent is ideal. This page provides a list of what is generally included in informed consent.

The consent form should include the benefits, risks, and limitations to genetic testing. A copy of the consent form should be provided to the patient.

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