Resource Center: genetics, ethics

This independent module helps the learner meet several different objectives, including the ability to discuss the relationship between Codes of Ethics and Professional Identity, identify the key interpretive statements, explain the significance of the Code in guiding and empowering nurses in their practice and workplace, and other objectives.

Advances in genetic research promise great strides in the diagnosis and treatment of many childhood diseases. However, emerging genetic technology often enables testing and screening before the development of definitive treatment or preventive measures. In these circumstances, careful consideration must be given to testing and screening of children to ensure that use of this technology promotes the best interest of the child. This statement reviews considerations for the use of genetic technology for newborn screening, carrier testing, and testing for susceptibility to late-onset conditions. Recommendations are made promoting informed participation by parents for newborn screening and limited use of carrier testing and testing for late-onset conditions in the pediatric population. Additional research and education in this developing area of medicine are encouraged.

Advances in genetic research promise great strides in the diagnosis and treatment of many childhood diseases. However, emerging genetic technology often enables testing and screening before the development of definitive treatment or preventive measures. In these circumstances, careful consideration must be given to testing and screening of children to ensure that use of this technology promotes the best interest of the child. This statement reviews considerations for the use of genetic technology for newborn screening, carrier testing, and testing for susceptibility to late-onset conditions. Recommendations are made promoting informed participation by parents for newborn screening and limited use of carrier testing and testing for late-onset conditions in the pediatric population. Additional research and education in this developing area of medicine are encouraged. (From Their Website)

Dr. Duncan speaks about genetic testing and young people.

The Committee on Genetics studies and makes recommendations to the Board of Directors on recent advances in genetics and provides support to chapters on state legislative issues as they relate to genetics. This is a description of current AAP policy statements authored by the COG.

A table which provides a current summary of state laws pertaining to the use of genetic information in health insurance. Restrictions on the use of genetic information in health insurance may address the use of genetic information in individual insurance, group insurance or both.

John B. Moeschler, MD, Michael Shevell, MD article published in the Pediatrics Journal

The American Medical Association code of Medical Ethics, opinion 9.115, which focuses on ethics consultations.

The code of medical ethics, from the American Medical Association, discusses opinions on 9 main topics, including social policy, inter professional relationships, hospital relations, fees, physician records, and professional rights and responsibilities.

National Guideline Clearinghouse is a public resource for evidence-based clinical practice guidelines. Users may start a search by typing keywords into the search box, or using the NGC Browse or Detailed Search features.